Category: Musings

So I Did A Thing…Disability & All

So I Did A Thing…Disability & All

I’m still learning how to navigate life with a disability. I haven’t taught CPR or first aid in years and I used to love it. Turns out I was really good at it, too. I loved seeing things click for students in class and watching them leave confident that if they witnessed an emergency, they …

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Unpopular Opinion: Neurodivergence Doesn’t Entitle You To Physically Accessible Spaces

Unpopular Opinion: Neurodivergence Doesn’t Entitle You To Physically Accessible Spaces

I was following someone on social media for their art. They also have autism and do a lot of advocacy, which I think is great. I unfollowed after a discussion about accessible spaces because it enraged me. I didn’t announce it, I just left. That’s what grownups do. Medical and mental health professionals have suggested …

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Chronic Illness: It’s Your Entire Identity Now

Chronic Illness: It’s Your Entire Identity Now

I’m the MS sufferer who will give it to you straight, absent the bullshit and toxic positivity. Today’s topic is Identity. The MINUTE you develop a chronic illness or a visible disability, that’s it for you. No matter what you’ve accomplished, or who you are, it doesn’t matter anymore. Now you’re a checked box. Your …

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Shame On Me! But Why?

Shame On Me! But Why?

For three years, I’ve felt a certain way whenever I had to leave my house and I recently realized it was shame. I felt a lot of shame about being disabled and needing a cane. Partly, it’s how society treats disabled people as less than, inconvenient, or somehow deficient as human beings. Partly, it was …

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This Is My Brain On Drugs

This Is My Brain On Drugs

It happened like they always said. I did drugs and then I dropped out of university. I couldn’t be happier! (Grab a snack and strap in, it’s a long post. There’s also strong language and some potential triggers re: suicide) Last year, the fall semester was challenging. I hated one of my profs because they’re …

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Approaching Three Years

Approaching Three Years

In a couple weeks, it’ll be the three year anniversary of my brain breaking. A few weeks after that, I turn 43. I was really excited to enter my forties. Big surprise, something I looked forward to was once again just a kick to the face from the Universe. So far? My forties have sucked. …

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We Are the Special Occasion

We Are the Special Occasion

For most of my life, I’ve spent a lot of time waiting for a special occasion. Feeling worthy of self-care or a little self-indulgence didn’t happen very often, so that was a special occasion too. I’m sure it’s from way back when I was homeless and hungry. Even once we weren’t homeless anymore, my useless …

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Ocrevus For the Win-Infusion Recap

Ocrevus For the Win-Infusion Recap

This month, I had my first Ocrevus infusion, had a birthday, and got my second infusion. Now I’ve had my loading doses, I’m good for six months before I go spend another day at the infusion clinic Suck it, B cells. The highlights: The pharmacist who prepared the infusions checked in afterwards to see how …

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Older, Wiser, Saltier, Happier?

Older, Wiser, Saltier, Happier?

This post is a brain dump. By recapping the last couple years and some things I learned, I’m hoping to clarify for myself what finally got me to this splendid place. Something definitely clicked a little while ago. I definitely critically examined every deeply rooted belief I could think of over the last 25 months. …

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Radical Self-Improvement to Radical Self-Acceptance

Radical Self-Improvement to Radical Self-Acceptance

When I was young, I was marinated in radical self-reliance. I added radical self-improvement for quite a long time, and now I’m done with that too. It’s time for radical self-acceptance. I’ve been in therapy most of my life, because reasons. I’ve done a lot of hard work to process a lot of hard things. …

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