I start immunosuppression next week. Do I love the idea of suppressing my immune system during a pandemic? Nope. (And we are still in a pandemic, just to be clear.) I also don’t love the idea of my overzealous immune system snacking on my brain and spinal cord. Like I told someone the other day, …
I’m about to show my overzealous and melodramatic immune system who’s boss. I also had a medication adjustment and I’m feeling much more like myself for the first time in ages. There are, of course, days when I’m not feeling great and my demeanour is a bit more subdued. Mostly though, it’s been great to …
Six months ago, I started a new medication to hopefully prevent new lesions in my brain and spinal cord. In that six months, I’ve gained almost thirty pounds. I’m frequently nauseated, dry heaving, pukey, and enjoying random and sudden bouts of explosive diarrhea. I’m nervous to eat, yet I still managed to get fat. I …
Lately, I’ve met a lot of individuals with opinions about disabled folks. What makes these opinions so special to me as a disabled person, is that they come from not disabled people. I cherish that knowledgeable feedback, truly. Everyone wants to be an ‘ally’ lately, fighting the good fight and righting the wrongs of oppression …
I’m so fed up with hypocrisy and fakery and lying, Can we normalize telling the truth? And by that I mean, the actual truth. See, a trend started awhile ago that screamed for authenticity. Everyone wanted authenticity, and transparency, and truth. Most people were lying about wanting that. They think they want that. It’s an …
Today is a bad day. Today, I have visible and obvious disabilities. It’s -30C and I can barely walk, but I left the house anyway. I struggled, but I’m learning to take up space just as I am. Since October 0f 2019, I’ve left my house to go for groceries about twice a month, mostly …
I ran like the wind! (If the wind was a barely moving air current propelled by a broken, rattling fan missing 3 of its 4 blades, squeaking with every revolution then yes, I ran like the wind.) But it doesn’t matter because I ran 5 intervals on the treadmill at 3.5 mph and it wasn’t …
Before we go any further, let me be clear that this is a general post aimed at anti-maskers, science deniers, covidiots, and spreadnecks protesting for their freedumbs in Alberta and it’s not aimed at a specific person and yes I absolutely rolled my eyes while typing this disclaimer. It’ll be the last such disclaimer I …
I’ve spent a lot of time in life being sorry for the feelings of others. I was sorry if I offended anyone. I was really sorry if I let anyone down. Someone mad at me would send me into an anxiety storm. Don’t even get me started on what I’d feel if I thought someone …
Day 2 of MS neuro rehab at Synaptic and my physiotherapist Jill has the best phrase. “It’s a little a lot.” As in, it’s a lot. It’s a little too much. Turns out I love the ‘clock’ game, but my enthusiasm was a little a lot. I needed to bring it down about two notches …
