Another day, another call from someone at the MS clinic, another blow to my mental health. Today for the sixth time, I had to explain to someone I’ve never met that I’m broke. I’ve lost everything. I’m bankrupt. Ruined. I was below the poverty level last year (thanks Astral Harvest, hope you enjoyed your party). …
Dear fellow privileged white folks: I can’t pretend I understand what it’s like to be a POC. I certainly don’t understand what it’s like to be a POC in the United States. But I feel pretty strongly that as a white person, who has enjoyed the privilege my light skin has afforded me… (For my …
It’s not a typo, I absolutely meant to type lesions. Glorious, glorious central nervous system lesions. And I’m a little mad about it. I had a phone appointment with my new neurologist from the MS clinic yesterday. They were really nice but that didn’t stop the hyperventilating panic attack once I hung up. I already …
If I see one more “Step out of your comfort zone” or “Growth happens at the end of your comfort zone” meme during this pandemic, I might just smack someone with my cane. How about, work on being a little less tone-deaf? Here’s the thing: NOBODY is in their comfort zone right now, unless they …
I’m trying to keep my mindset positive while living with multiple sclerosis. Not so much that I’ve found a silver lining about MS (I don’t think there is one) but just finding little things every day that are good. I’ve had six months of rough days. Mentally rough, physically rough, emotionally rough. It’s so hard …
More people need to learn the art of saying nothing, in my opinion. I get that people want to be nice. Supportive. They want to say something, anything, to make a situation better. This post is just some food for thought and how I feel about my particular disease. I’m not trying to speak for …
Today started out pretty rough but I didn’t go on a rampage or end up arrested, so I guess that’s a positive. And I turned it around, too. I even surrendered and used my cane after months of resistance, but we’ll get to that. Firstly, I didn’t sleep well. It took forever to fall asleep, …
Slowing down to smell the roses wasn’t my choice. Thanks to Madoff, the lesion on my pons, I can’t walk quickly anymore, move quickly, get up quickly…I have to do everything slowly, only as fast as the signals can get past my brain lesion. Some days are worse than others. Today, I was feeding Calvin. …
AKA How Becoming Disabled Was Surprisingly Good For My Marriage Receiving a life-changing diagnosis or becoming disabled can help a marriage or hurt it. I’m grateful that my marriage got better because I know it’s not like that for everyone. Cam had been working a ton back in 2018, which irritated me. As independent as …
