I’ve only started establishing boundaries in the last couple years and I’ve learned that you can learn a lot about people when you set boundaries for your self-respect and well-being. You also learn a ton about people when they don’t get what they want. In future, I’m going to set boundaries sooner as a way …
Waking up disabled last October changed a lot of things, including my mindset, which has done a complete 180. I used to be all about accomplishments. Now I’m only interested in experiences. Experiencing something feels better than accomplishing something. My entire life, I was always rushing and striving to accomplish things. I had this unconscious …
I had an appointment with my family doctor just before the weekend. She’s a rural physician, and she’s amazing. I totally trust her being in charge of my healthcare. I’m undecided about MS medication, though. I had a really long talk with her about it. I really don’t want to take the medication. The more …
Another day, another call from someone at the MS clinic, another blow to my mental health. Today for the sixth time, I had to explain to someone I’ve never met that I’m broke. I’ve lost everything. I’m bankrupt. Ruined. I was below the poverty level last year (thanks Astral Harvest, hope you enjoyed your party). …
Dear fellow privileged white folks: I can’t pretend I understand what it’s like to be a POC. I certainly don’t understand what it’s like to be a POC in the United States. But I feel pretty strongly that as a white person, who has enjoyed the privilege my light skin has afforded me… (For my …
It’s not a typo, I absolutely meant to type lesions. Glorious, glorious central nervous system lesions. And I’m a little mad about it. I had a phone appointment with my new neurologist from the MS clinic yesterday. They were really nice but that didn’t stop the hyperventilating panic attack once I hung up. I already …
If I see one more “Step out of your comfort zone” or “Growth happens at the end of your comfort zone” meme during this pandemic, I might just smack someone with my cane. How about, work on being a little less tone-deaf? Here’s the thing: NOBODY is in their comfort zone right now, unless they …
I’m trying to keep my mindset positive while living with multiple sclerosis. Not so much that I’ve found a silver lining about MS (I don’t think there is one) but just finding little things every day that are good. I’ve had six months of rough days. Mentally rough, physically rough, emotionally rough. It’s so hard …
More people need to learn the art of saying nothing, in my opinion. I get that people want to be nice. Supportive. They want to say something, anything, to make a situation better. This post is just some food for thought and how I feel about my particular disease. I’m not trying to speak for …
Today started out pretty rough but I didn’t go on a rampage or end up arrested, so I guess that’s a positive. And I turned it around, too. I even surrendered and used my cane after months of resistance, but we’ll get to that. Firstly, I didn’t sleep well. It took forever to fall asleep, …
