In today’s instalment of So You Woke Up Disabled, something to help you work safer in the kitchen. I call it the Wolverine or the Veggie Stabber. I guess it’s real name is food slice assistant. TL;WR: Something that helps cut and slice things safely if you have hand weakness or poor motor control. Also …
I’ve joked for the last few years that a handbook called So You Woke Up Disabled would be really handy to help one learn to navigate their new, shitty normal and offer some workarounds.. Haven’t found one, so I guess I should do it. Today, let’s talk about the game-changing dolly I got from Amazon. …
For three years, I’ve felt a certain way whenever I had to leave my house and I recently realized it was shame. I felt a lot of shame about being disabled and needing a cane. Partly, it’s how society treats disabled people as less than, inconvenient, or somehow deficient as human beings. Partly, it was …
It happened like they always said. I did drugs and then I dropped out of university. I couldn’t be happier! (Grab a snack and strap in, it’s a long post. There’s also strong language and some potential triggers re: suicide) Last year, the fall semester was challenging. I hated one of my profs because they’re …
In a couple weeks, it’ll be the three year anniversary of my brain breaking. A few weeks after that, I turn 43. I was really excited to enter my forties. Big surprise, something I looked forward to was once again just a kick to the face from the Universe. So far? My forties have sucked. …
For most of my life, I’ve spent a lot of time waiting for a special occasion. Feeling worthy of self-care or a little self-indulgence didn’t happen very often, so that was a special occasion too. I’m sure it’s from way back when I was homeless and hungry. Even once we weren’t homeless anymore, my useless …
This month, I had my first Ocrevus infusion, had a birthday, and got my second infusion. Now I’ve had my loading doses, I’m good for six months before I go spend another day at the infusion clinic Suck it, B cells. The highlights: The pharmacist who prepared the infusions checked in afterwards to see how …
This post is a brain dump. By recapping the last couple years and some things I learned, I’m hoping to clarify for myself what finally got me to this splendid place. Something definitely clicked a little while ago. I definitely critically examined every deeply rooted belief I could think of over the last 25 months. …
When I was young, I was marinated in radical self-reliance. I added radical self-improvement for quite a long time, and now I’m done with that too. It’s time for radical self-acceptance. I’ve been in therapy most of my life, because reasons. I’ve done a lot of hard work to process a lot of hard things. …
I start immunosuppression next week. Do I love the idea of suppressing my immune system during a pandemic? Nope. (And we are still in a pandemic, just to be clear.) I also don’t love the idea of my overzealous immune system snacking on my brain and spinal cord. Like I told someone the other day, …
