I’m about to show my overzealous and melodramatic immune system who’s boss. I also had a medication adjustment and I’m feeling much more like myself for the first time in ages. There are, of course, days when I’m not feeling great and my demeanour is a bit more subdued. Mostly though, it’s been great to …
Six months ago, I started a new medication to hopefully prevent new lesions in my brain and spinal cord. In that six months, I’ve gained almost thirty pounds. I’m frequently nauseated, dry heaving, pukey, and enjoying random and sudden bouts of explosive diarrhea. I’m nervous to eat, yet I still managed to get fat. I …
Lately, I’ve met a lot of individuals with opinions about disabled folks. What makes these opinions so special to me as a disabled person, is that they come from not disabled people. I cherish that knowledgeable feedback, truly. Everyone wants to be an ‘ally’ lately, fighting the good fight and righting the wrongs of oppression …
I’m so fed up with hypocrisy and fakery and lying, Can we normalize telling the truth? And by that I mean, the actual truth. See, a trend started awhile ago that screamed for authenticity. Everyone wanted authenticity, and transparency, and truth. Most people were lying about wanting that. They think they want that. It’s an …
Today is a bad day. Today, I have visible and obvious disabilities. It’s -30C and I can barely walk, but I left the house anyway. I struggled, but I’m learning to take up space just as I am. Since October 0f 2019, I’ve left my house to go for groceries about twice a month, mostly …
I ran like the wind! (If the wind was a barely moving air current propelled by a broken, rattling fan missing 3 of its 4 blades, squeaking with every revolution then yes, I ran like the wind.) But it doesn’t matter because I ran 5 intervals on the treadmill at 3.5 mph and it wasn’t …
Lord jeeeeesus I hope I survive this depression phase of my life so I can fondly look back at it as my Bat Shit Crazy phase and have it be just another crappy memory. Reader Discretion Warning: This isn’t a feel good post. You might want to make make yourself a chip sandwich because I’m …
While MS isn’t contagious, it can certainly affect others around me. Whoops. Someone who watched my Instagram Story yesterday sent me a message, asking “What happened, it sounds like you beat up on a physiotherapist?” Correct, but hear me out… I am exhausted, as I might have complained about a time or six before. My …
So many splendid improvements to report! I had my 4 week assessment at Synaptic last week and I have improvements on testing. There are a bunch of other improvements that aren’t related to testing. that I’m excited to report. I jumped for the first time in over a year a few days before the assessment, …
16 days in and I’m making splendid progress at the Synaptic clinic in Calgary. I was hoping to have this update written and uploaded before the two week mark but I needed six more naps. Have I mentioned that neuro rehab is exhausting? Walking is going great. I’m already walking easier than I have in …
