I start immunosuppression next week. Do I love the idea of suppressing my immune system during a pandemic? Nope. (And we are still in a pandemic, just to be clear.) I also don’t love the idea of my overzealous immune system snacking on my brain and spinal cord. Like I told someone the other day, …
Lately, I’ve met a lot of individuals with opinions about disabled folks. What makes these opinions so special to me as a disabled person, is that they come from not disabled people. I cherish that knowledgeable feedback, truly. Everyone wants to be an ‘ally’ lately, fighting the good fight and righting the wrongs of oppression …
Today is a bad day. Today, I have visible and obvious disabilities. It’s -30C and I can barely walk, but I left the house anyway. I struggled, but I’m learning to take up space just as I am. Since October 0f 2019, I’ve left my house to go for groceries about twice a month, mostly …
Hope is my least favourite feeling. People are starting to ask me if I’m excited about starting neuro rehab with the PONS device in a couple weeks. I don’t feel like explaining my complicated emotional landscape to them. I know they mean well, but I’m not going to an all-inclusive resort for a vacation. Some …
My disease and disability in not a moral failing. It’s not because I’m a bad person or I made a stupid decision like drunk driving, or I didn’t know how to be healthy. See below for evidence. I was fit, active, and healthy. Until I wasn’t. I have a disease and it’s left me disabled. …
Waking up disabled last October changed a lot of things, including my mindset, which has done a complete 180. I used to be all about accomplishments. Now I’m only interested in experiences. Experiencing something feels better than accomplishing something. My entire life, I was always rushing and striving to accomplish things. I had this unconscious …
Today started out pretty rough but I didn’t go on a rampage or end up arrested, so I guess that’s a positive. And I turned it around, too. I even surrendered and used my cane after months of resistance, but we’ll get to that. Firstly, I didn’t sleep well. It took forever to fall asleep, …
