I’ve been really busy with work and I forgot to write about med changes! They happened in September. Better living through pharmacology. This year, I saw not only my awesome neurologist but also a physiatrist. He’s also cool, a bit sardonic but that’s my jam so the appointment was great. He’s the doc who specializes …
Twice a year, I go to the city for an Ocrevus infusion to manage MS. It keeps my immune system from snacking on my brain and spinal cord. The first time was terrifying because I had no idea what to expect. What did they think might happen, given all the talk about infusion reaction, pre-medication …
I got an Alinker and joined a study on it and it’s amazing. It’s a walking bike, a different type of mobility aid. It’s like a walker but you’re supported on a seat the whole time. You’re essentially walking like you used to. If you go to my A Splendid Mess page on Facebook, you …
I’m still learning how to navigate life with a disability. I haven’t taught CPR or first aid in years and I used to love it. Turns out I was really good at it, too. I loved seeing things click for students in class and watching them leave confident that if they witnessed an emergency, they …
I was following someone on social media for their art. They also have autism and do a lot of advocacy, which I think is great. I unfollowed after a discussion about accessible spaces because it enraged me. I didn’t announce it, I just left. That’s what grownups do. Medical and mental health professionals have suggested …
I’m the MS sufferer who will give it to you straight, absent the bullshit and toxic positivity. Today’s topic is Identity. The MINUTE you develop a chronic illness or a visible disability, that’s it for you. No matter what you’ve accomplished, or who you are, it doesn’t matter anymore. Now you’re a checked box. Your …
The nice thing about hiking this trail in Canmore (Alberta) is the options. AllTrails marked this trail as easy, which is true but you have a couple of options that make it moderately challenging with disability. I did it with a cane and a great deal of the trail is accessible to ‘wheelies.’ I have …
This dicer chopper thing is the greatest thing ever. Once again, a splendid Amazon find: https://a.co/d/8FemQCd Did you know that most infomercial gadgets are for disabled folks? True story. So if you ever thought, “Come on asssssss iffffff we need a doohickey to do that. How stupid are some people?…” Not stupid, physically limited. I …
In today’s instalment of So You Woke Up Disabled, something to help you work safer in the kitchen. I call it the Wolverine or the Veggie Stabber. I guess it’s real name is food slice assistant. TL;WR: Something that helps cut and slice things safely if you have hand weakness or poor motor control. Also …
I’ve joked for the last few years that a handbook called So You Woke Up Disabled would be really handy to help one learn to navigate their new, shitty normal and offer some workarounds.. Haven’t found one, so I guess I should do it. Today, let’s talk about the game-changing dolly I got from Amazon. …
