I got an Alinker and joined a study on it and it’s amazing. It’s a walking bike, a different type of mobility aid. It’s like a walker but you’re supported on a seat the whole time. You’re essentially walking like you used to. If you go to my A Splendid Mess page on Facebook, you …
I’m still learning how to navigate life with a disability. I haven’t taught CPR or first aid in years and I used to love it. Turns out I was really good at it, too. I loved seeing things click for students in class and watching them leave confident that if they witnessed an emergency, they …
I was following someone on social media for their art. They also have autism and do a lot of advocacy, which I think is great. I unfollowed after a discussion about accessible spaces because it enraged me. I didn’t announce it, I just left. That’s what grownups do. Medical and mental health professionals have suggested …
I’m the MS sufferer who will give it to you straight, absent the bullshit and toxic positivity. Today’s topic is Identity. The MINUTE you develop a chronic illness or a visible disability, that’s it for you. No matter what you’ve accomplished, or who you are, it doesn’t matter anymore. Now you’re a checked box. Your …
The nice thing about hiking this trail in Canmore (Alberta) is the options. AllTrails marked this trail as easy, which is true but you have a couple of options that make it moderately challenging with disability. I did it with a cane and a great deal of the trail is accessible to ‘wheelies.’ I have …
This dicer chopper thing is the greatest thing ever. Once again, a splendid Amazon find: https://a.co/d/8FemQCd Did you know that most infomercial gadgets are for disabled folks? True story. So if you ever thought, “Come on asssssss iffffff we need a doohickey to do that. How stupid are some people?…” Not stupid, physically limited. I …
In today’s instalment of So You Woke Up Disabled, something to help you work safer in the kitchen. I call it the Wolverine or the Veggie Stabber. I guess it’s real name is food slice assistant. TL;WR: Something that helps cut and slice things safely if you have hand weakness or poor motor control. Also …
I’ve joked for the last few years that a handbook called So You Woke Up Disabled would be really handy to help one learn to navigate their new, shitty normal and offer some workarounds.. Haven’t found one, so I guess I should do it. Today, let’s talk about the game-changing dolly I got from Amazon. …
For three years, I’ve felt a certain way whenever I had to leave my house and I recently realized it was shame. I felt a lot of shame about being disabled and needing a cane. Partly, it’s how society treats disabled people as less than, inconvenient, or somehow deficient as human beings. Partly, it was …
This month, I had my first Ocrevus infusion, had a birthday, and got my second infusion. Now I’ve had my loading doses, I’m good for six months before I go spend another day at the infusion clinic Suck it, B cells. The highlights: The pharmacist who prepared the infusions checked in afterwards to see how …
